Life Update II

Hi everyone I miss you all and I miss my place here to escape. I can’t wait to have the time to spend on here again. I hope it’ll be soon. Because it’s definitely good for me.

As you all know, I’ve been obsessed with my daughter’s dizziness issue and finding someone that can help her. So far, we’ve seen a ton of specialists and had a ton of tests done and everyone’s stumped bc her test results are always normal. So most of the doctors have been like “MAYBE it’s this condition, so try these drugs and we’ll see.”

And none of those drugs or treatments have helped.

We did see a new doctor last week. We had to travel several states away to see him but he’s supposed to be the best, and if he can help her feel better then it is totally worth it.

She actually failed his tests, so this is the first doctor she’s been to with a legitimate clue we can follow. He did a bunch of functional tests and he told us “normal 2 year olds can pass these tests.” My daughter did not.

For example, one test he did is where he wrote letters on her legs with her eyes closed. When he wrote letters on her left leg, she got them all correct “G” “D” “R” etc…. When he wrote letters on her right leg, she was like “I don’t know” “I don’t know” “I don’t know” etc… It was really jarring to see. I never noticed she was having all these other issues too.

But this is the first doctor that could validate that something was wrong. He was like “Of course she’s dizzy, her brain is struggling so much. I can see it.” This validation is such a big deal.

So he thinks he can help her. But he wants to do 2 weeks (at least) of in-person rehab. We’ll basically have to move there for a little while. We’ll do it, just figuring out some logistics now.

And I reached out to my workplace because they offered to pay travel expenses for employees getting medical services that aren’t available locally (due to the recent Supreme Court ruling), and they didn’t shut me down. Surprisingly. They asked me to provide some documentation on why my daughter’s medical service isn’t available locally. So I’m going-through that process now too. We’ll see how it works out. It’ll be a big help.

So that’s my latest news. I hope you all are doing much better than we are!

8 Replies to “Life Update II”

  1. Although failing tests doesn’t sound like a good thing on the surface, I’m glad at least that this guy recognizes that there is something going on in her brain. Hopefully you can get some answers and get the logistics worked out.

  2. That is great news! I am so grateful that you are finally getting some answers! I hope your work does pay for things. All the best to you both!❤️

  3. This is a big step in the right direction – healing and figuring out what’s going on with your daughter. Thanks for sharing and I know we all wish you both the best…answers to what’s going on and solutions to heal her! Good luck!

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