So my daughter’s current dizzy spell episode has been ongoing since March 28. That’s an terribly long time to be dizzy.
I asked her yesterday how she was feeling, and she replied “I feel normal”.
I got my hopes up that she was finally feeling better and I excitedly asked “Yay, so you’re no longer dizzy?!”
Her response: “My normal IS dizzy.”
That just broke my heart. It’s not right. She’s just a kid.
I don’t know what to do. She’s been powering-through pretty well. She’s been going to school and playing with friends occasionally and even had her birthday party. So she’s persevering ok. But I still don’t want her suffering with no relief.
I’ve taken her to her cardiologist and her ENT in the last few weeks and they don’t have anything new for us to try anymore for relief. And then I can’t even get a phone call back from her neurologist, so I guess I’m hunting around for a new neurologist now too.
I feel very let-down by the doctors we’ve tried. And I’m not saying this against any person specifically, because they’ve all been very nice to us and I believe they care personally. But I think the medical establishment is to blame with how they’ve setup their practices and systems.
I feel like the system only takes care of people that need a prescription or an expensive test. Anything that involves more investigative care, falls out of scope and they don’t have the time for that.
My daughter falls outside of that scope and I’m now finding it impossible to find someone to help her. She needs an investigative team of doctors. But the specialists don’t talk to each other! I have to tell her cardiologist what the ENT and neurologist have told me. I have to tell her ENT what her cardiologist and neurologist have told me. I have to tell her neurologist what her ENT and cardiologist have told me.
This system is not working. It is failing my daughter. I need to find her real help.
I feel like I am her doctor now. Doctor Pepper. And Google and Facebook groups for people suffering from dizziness is my medical degree. I’m going to fix this myself. For her.
In good news, her foot is finally feeling better now that she’s been walking and playing around without any support and the pain is very minimal. I’m scared to say that her surgery was a success because I don’t want to jinx anything but I have hope now that’s the case! So we’re going to try to ramp up her physical activity.
Good old fashioned exercise is definitely at the top of my personal treatment plan for her. We’ll give it a try.
Wish us luck!