Health Updates

So my daughter’s current dizzy spell episode has been ongoing since March 28. That’s an terribly long time to be dizzy.

I asked her yesterday how she was feeling, and she replied “I feel normal”.

I got my hopes up that she was finally feeling better and I excitedly asked “Yay, so you’re no longer dizzy?!”

Her response: “My normal IS dizzy.”

Dammit.

That just broke my heart. It’s not right. She’s just a kid.

I don’t know what to do. She’s been powering-through pretty well. She’s been going to school and playing with friends occasionally and even had her birthday party. So she’s persevering ok. But I still don’t want her suffering with no relief.

I’ve taken her to her cardiologist and her ENT in the last few weeks and they don’t have anything new for us to try anymore for relief. And then I can’t even get a phone call back from her neurologist, so I guess I’m hunting around for a new neurologist now too.

I feel very let-down by the doctors we’ve tried. And I’m not saying this against any person specifically, because they’ve all been very nice to us and I believe they care personally. But I think the medical establishment is to blame with how they’ve setup their practices and systems.

I feel like the system only takes care of people that need a prescription or an expensive test. Anything that involves more investigative care, falls out of scope and they don’t have the time for that.

My daughter falls outside of that scope and I’m now finding it impossible to find someone to help her. She needs an investigative team of doctors. But the specialists don’t talk to each other! I have to tell her cardiologist what the ENT and neurologist have told me. I have to tell her ENT what her cardiologist and neurologist have told me. I have to tell her neurologist what her ENT and cardiologist have told me.

This system is not working. It is failing my daughter. I need to find her real help.

I feel like I am her doctor now. Doctor Pepper. And Google and Facebook groups for people suffering from dizziness is my medical degree. I’m going to fix this myself. For her.

In good news, her foot is finally feeling better now that she’s been walking and playing around without any support and the pain is very minimal. I’m scared to say that her surgery was a success because I don’t want to jinx anything but I have hope now that’s the case! So we’re going to try to ramp up her physical activity.

Good old fashioned exercise is definitely at the top of my personal treatment plan for her. We’ll give it a try.

Wish us luck!

18 Replies to “Health Updates”

    1. No, we haven’t tried that yet. I’ve started looking for a reputable functional medicine / naturopathy clinic around here to see if they have anything to help relieve her symptoms, but I can’t quite find one that treats children or has a good reputation. :(

  1. What popped into my head after reading this is acupuncture. I know your insurance may not cover it but it might help her. When I’m faced with difficulties that I don’t know what to do about, more and more I’ve been turning to God. I don’t know if you are a spiritual person Pepper but prayers do get answered. Sending a big hug your way. The answers will come!

    1. I’ll take the big hug anytime! I’m definitely willing to check out other treatments that could help, especially since we’ve already extensively tried mainstream doctors and medicines and they do NOT work. :(

  2. Dr. Pepper- That has a bubbly ring to it! Haha! Seriously, though, I’m so sorry. I’m praying that there will be something that emerges from this difficult time, which you will look back on, one day, with fondness. Maybe it’s time together in the waiting room, or jamming to the radio on the extra car rides. Everything succumbs to “this too shall pass” eventually and I hope this one leaves behind nuggets of joy when it finally departs. Praying for you both!

  3. That poor sweet girl! My heart hurts for her and for you, Pepper! As a parent, I know this has got to be hard for you watching your baby suffer like she is. And I agree with you that the medical establishment absolutely sucks! It’s all a money racket and I was told this by an instructor during my first semester of Nursing School. I pray that you find something that works for her. I also pray that God heal her. Sending you both lots of hugs! 🤗🤗🤗

    1. Thank you so much Cherie! I definitely have not been impressed by the medical establishment so far. It certainly doesn’t seem setup to help people, does it? But I appreciate your prayers and your hugs. I love you! :)

  4. You know, we get mocked for using Google for help, but the system leaves us desperate and with no choice. Hope you’re able to find someone that can help.

    1. Well… most of Google didn’t help. It just made me frustrated and depressed honestly. But I did find some medical research papers published online that have helped tremendously! I need to update you on this too! :)

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